I’m Emily and I’m 16.
My older brother Ben has a physical disability and uses a powered wheelchair.
Growing up, helping him was just part of everyday life. I learnt how to fasten wheelchair straps before I learnt how to ride a bike. I know how to charge batteries, pack emergency medication, fold specialist equipment into the car and find places that are actually accessible, not just advertised that way. Some days it can be exhausting.
If Ben is unwell, plans change at the last minute. Family days out need military-style planning and holidays take weeks of organising. I’ve missed birthday parties, football matches and sleepovers because my family needed me.
Sometimes I felt guilty for wishing life was easier. Then I discovered that lots of young carers feel exactly the same.
Talking to other young carers helped me realise that looking after myself isn’t selfish. If I’m stressed or exhausted, I can’t be there for Ben in the way I want to be. So now I make sure I have my own time too.
I still help him all the time, reach things he can’t get to and race him through the park when he’s feeling competitive. I let him beat me, most of the time!
People often tell me I’m “amazing”, but I don’t really see it that way.
I’m just his sister.
We’re a team.
And although being a young carer isn’t always easy, it’s also made me stronger, more understanding and more determined to make sure everyone can be included.
Because Ben deserves the chance to laugh, dream and belong.
